Project HEALING

Study Overview

The University of Texas at Austin School of Nursing, in collaboration with generous funding from the Neuropathy Alliance of Texas, is conducting a study to learn more about the experiences of people with peripheral neuropathy (PN).

The purpose of this study is to better understand what is important to people with neuropathy. Our goal is to develop a state-of-the-art program that addresses the most common symptoms and limitations that impact quality of life. By taking this survey, participants may become more aware of how their symptoms are affecting their life, and they can request a link to resources with tips for symptom management. Participation in this study may also help people with neuropathy in the future. 

Project HEALING: Health, Empowerment, Autonomy & Learning in Neuropathy Groups began with an anonymous, online survey that will explore symptoms, physical and psychological limitations, self-management activities and coping strategies.

We recruited people ages 18 and over who were currently experiencing symptoms of peripheral neuropathy. The first phase of Project HEALING invites people with neuropathy to complete an anonymous, online survey that is available in both English and Spanish and includes mostly multiple-choice questions. This will take approximately 20 minutes to complete. To show our appreciation, participants will be invited to provide their email address to receive a $25 e-gift card upon completion of the survey. Participants can also request additional resources about neuropathy self-management and choose whether they would like to be contacted again to participate in a group program (Phase II).

Upon survey completion, participants were offered additional resources about neuropathy self-management and were invited to share their contact information if they wanted to be contacted again to participate in a future group program. This study was concluded in November 2021.