Project HEALING

test


Participation

Study Overview

The University of Texas at Austin School of Nursing, in collaboration with generous funding from the Neuropathy Alliance of Texas, is conducting a study to learn more about the experiences of people with peripheral neuropathy (PN).

The purpose of this study is to better understand what is important to people with neuropathy. Our goal is to develop a state-of-the-art program that addresses the most common symptoms and limitations that impact quality of life. By taking this survey, participants may become more aware of how their symptoms are affecting their life, and they can request a link to resources with tips for symptom management. Participation in this study may also help people with neuropathy in the future. 

Project HEALING: Health, Empowerment, Autonomy & Learning iNeuropathy Groups will begin with an anonymous, online survey that will explore symptoms, physical and psychological limitations, self-management activities and coping strategies.

We are now recruiting people ages 18 and over who are currently experiencing symptoms of peripheral neuropathy. The first phase of Project HEALING invites people with neuropathy to complete an anonymous, online survey that is available in both English and Spanish and includes mostly multiple-choice questions. This will take approximately 20 minutes to complete. To show our appreciation, participants will be invited to provide their email address to receive a $25 e-gift card upon completion of the survey. Participants can also request additional resources about neuropathy self-management, and choose whether they would like to be contacted again to participate in a group program (Phase II).

Click Here to take the Survey

Contact: Please contact us to discuss how you can participate by emailing ProjectHealing@utexas.edu.

Participation Eligibility

  1. In order to participate, you must be experiencing symptoms of peripheral neuropathy.
  2. You must be at least 18 years old.
  3. You must be a resident of the United States.

Study Procedures

Things you should know if you choose to participate in this study:

  • The purpose of the study is to learn more about self-management activities and coping strategies among people with peripheral neuropathy (PN).
  • In order to participate, you must be at least 18 years old, have symptoms of peripheral neuropathy and express a willingness to participate in all aspects of the study.
  • If you choose to participate, you will be asked to complete an online survey that includes mostly multiple-choice questions. This will take approximately 30 minutes of your time.
  • Risks from this research include possible discomfort when answering questions related to your emotional status or mental health (for example, depression). You are welcome to skip any questions that make you feel uncomfortable.
  • The possible benefit of this study is that the information you provide may help others in the future.
  • Taking part in this research study is voluntary. You do not have to participate, and you can stop at any time.
  • After completion of the survey, you will receive a $25 e-gift card as a thank you for your time.
  • Participants can also request additional resources about neuropathy self-management, and choose whether they would like to be contacted again to participate in a group program (Phase II).

Click Here to take the Survey

Resources

Self-Management Resources


Mental Health and Safety


Support Groups

Austin, Texas - Support Group

Meeting Place: Conely-Guerrero Senior Center, Education Room

Address: 808 Nile St., Austin, TX 78702

Time: Tuesdays, once per month. 9:30 to 11:00 a.m,

Contact: Call Marty Meraviglia at 512-970-5454 for more information. 

Houston, Texas - Support Group

Name: Houston Neuropathy Support Group

Meeting Place: via Zoom

Time: 2nd Saturday of each month from 1:00 to 2:30 p.m. CST

Contact: Email Katherine Stenzel at klstenzel@hotmail.com for more information and Zoom link.

Note: While the group is located in Houston, anyone is welcome to attend the Zoom meetings.

Other Support Grous, Information and Resources


Basic Education


Additional Resources - The Foundation for Peripheral Neuropathy

La Escuela de Enfermería de la Universidad de Texas en Austin, en colaboración con el generoso financiamiento de la Alianza de Neuropatía de Texas, está realizando un estudio para aprender más sobre las experiencias de las personas con neuropatía periférica (NP).

La meta de este estudio es entender mejor qué es importante para las personas con neuropatía para ayudarnos a desarrollar un programa de vanguardia que abarque los síntomas más comunes y las limitaciones que impactan la calidad de vida. Al tomar esta encuesta, los participantes podrían estar más al tanto de cómo sus síntomas están afectando sus vidas y pueden solicitar un enlace para recursos con consejos para el manejo de síntomas. Participar en este estudio podría también ayudar a personas con neuropatía en el futuro.

Project HEALING (Proyecto Sanando): Salud, Empoderamiento, Autonomía y aprendizaje en grupos de Neuropatía, comenzará con una encuesta anónima en línea que explorará síntomas, limitaciones físicas y psicológicas, las actividades de autogestión y las estrategias de afrontamiento.

Ahora estamos reclutando personas de 18 años en adelante, que actualmente experimentan síntomas de neuropatía periférica. La primera fase del Proyecto HEALING (Sanando) invita a las personas con neuropatía a completar una encuesta anónima en línea, que está disponible tanto en inglés como en español e incluye mayormente preguntas de selección múltiple. Esta tomará aproximadamente 20 minutos para completar. Para mostrar nuestro aprecio, se invitará a los participantes a proporcionar su dirección de correo electrónico si desean recibir una tarjeta de regalo electrónica de $ 25 dólares al completar la encuesta. También, ellos podrán solicitar recursos adicionales sobre el autocontrol de la neuropatía y / o ser contactados nuevamente para participar en la intervención (fase II).

Haz click aquí para realizar la encuesta

Contact Information

Project HEALING Survey

If you choose to participate in the Project HEALING study, you will need to complete an online survey that includes mostly multiple-choice questions. This will take approximately 30 minutes of your time.

Click Here to take the Survey